Category Archives: diary

Happy Father’s Day, You Fathers of Rett Girls


The dirty little secret about Caroline’s Cause is this: we are amateurs.  Amateur bloggers, amateur community organizers, and  medical laymen (except for Lisa, who is a bona fide nurse). But Rett Syndrome doesn’t strike only those of us who are well … Continue reading

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Enjoying the hot tub


Many thank you’s go to Make-A-Wish Foundation for granting the wish for a hot tub for Caroline. The hot tub is wonderful for Caroline – it enables her to relax her muscles.  Very therapeutic and beneficial to keep Caroline limber … Continue reading

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I HAVE A MOUTH AND CANNOT EAT: Managing Food with Rett Syndrome


I am struck by the list of simple tasks that my niece, Caroline, can’t do for herself. Somewhere in the promotional material for the upcoming golf event, it says she can’t “sit, crawl, stand, talk or eat.” Can’t eat? I know … Continue reading

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