Tag Archives: caroline’s life

Eight Years on the Planet


Late last month, Caroline (pictured) turned eight. Eight years on the planet. For Caroline’s birthday, Tony had a little cake party at Hershey park. My daughter will turn thirteen in January and already we have begun the planning for how she will spend the day. … Continue reading

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The Margin of Error is Five Degrees, the Margin of Hope is Much Greater


Caroline went to her orthopedic surgeon today.  Six months ago at her appointment I was told to prepare myself for an upcoming surgery on her spinal column to correct her scoliosis. They like to tell us 2 years in advance … Continue reading

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Dr Warren, My Hero!


I can t write a blog about Caroline and Rett Syndrome without mentioning Dr.  Stewart Warren, Pediatric Pulmonology at Hershey Medical Center. Dr. Warren and I first met in 2004 when Caroline was experiencing some respiratory problems and our family … Continue reading

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Caroline’s Prayer


Please tell my parents they have nothing to fear. Please tell them that I was sent from above, just so they could give me all of their love. Continue reading

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Saturday is Church Day


Saturday evening is church day for our family. We attend Lives Changed by Christ (LCBC) Church in Manheim Pa. This church is a very large church and anything but the typical church that I have known growing up. It has over 9,000 members across three … Continue reading

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Speak, Child. Be Heard.


Hi, my name is Caroline and I am 7 years old and have Rett Syndrome. Some days Rett Syndrome has me down, but I am determined to not let those days outweigh the good days. My family and nurses help … Continue reading

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A Note From Big Sister


  (Click for larger image.)

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Make-A-Wish: If Wishes Were Kisses, Our Face Would be Wet


I think we’ve all heard of Make-A-Wish Foundation, the national nonprofit that helps out terminally ill children by granting them a wish. I’ve mostly heard about it in references to popular culture, where it’s apparently hugely popular to parody. If you look at its Wikipedia … Continue reading

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Friday, October 29: Dress Down for Rett Syndrome Awareness


Next Friday, October 22, Friday October 29, Caroline’s Cause is hosting a dress down event at Steel-High, the highschool where Tony works. I understand Tony will be whipping up and serving a special batch of Dress Down Chili in the … Continue reading

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Believe: The Director’s Cut


Yesterdays’ video, Believe, was hugely popular! In fact, with 78 page views, it was THE most popular post ever on Caroline’s Cause. Today’s video is also pretty cool. Tony told me this was his practice video, where he figured out how … Continue reading

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