Tag Archives: parenting disabled children

A View Into Rett Syndrome on The View


If you’re like me, you have never heard of The View, a daytime talk show with a bunch of women talking about politics and current events. Last week The View turned their attention to Rett syndrome, featuring a segment with a young family whose … Continue reading

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A Spoonful of Applesauce


Today’s Headline News: Caroline ate a few spoonfuls of applesauce. Big news, right? Well, it is if you haven’t had anything to eat with your mouth in over six years! After Caroline’s diagnosis of Rett syndrome, one the of first procedures we had … Continue reading

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Eight Years on the Planet


Late last month, Caroline (pictured) turned eight. Eight years on the planet. For Caroline’s birthday, Tony had a little cake party at Hershey park. My daughter will turn thirteen in January and already we have begun the planning for how she will spend the day. … Continue reading

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The Rett Syndrome Handbook: In Words You Can Understand From Those Who Understand

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The Rett Syndrome Handbook: In Words You Can Understand From Those Who Understand

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The Official Parent’s Sourcebook on Rett Syndrome: A Revised and Updated Directory for the Internet Age

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The Official Parent’s Sourcebook on Rett Syndrome: A Revised and Updated Directory for the Internet Age

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Cloud B Twilight Constellation Night Light

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Cloud b Twilight Constellation Night Light, Turtle This is one of Caroline’s favorite things. I am not certian she is afraid of the dark, but she loves the how this thing glows and casts a curtain of stars across a … Continue reading

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Angels Among Us


Caroline’s Cause put this video together to give Caroline a way to thank all the wonderful people out there that have given her the love and care that she desperately needs until the cure is found. Without EVERYONE contributing Caroline would not be where she is today. As the saying goes..”it takes a village to raise a child” God sent Caroline a village of angels!

Thank you all for caring.

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Lifting Balloons and Raising Awareness for Rett Syndrome


On Friday, October 22, Caroline’s family and friends met to release 4 dozen purple balloons. The balloon release was done to honor and support the girls affected by Rett Syndrome. The hope and prayer is to raise awareness for Rett … Continue reading

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Dr Warren, My Hero!


I can t write a blog about Caroline and Rett Syndrome without mentioning Dr.  Stewart Warren, Pediatric Pulmonology at Hershey Medical Center. Dr. Warren and I first met in 2004 when Caroline was experiencing some respiratory problems and our family … Continue reading

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Saturday is Church Day


Saturday evening is church day for our family. We attend Lives Changed by Christ (LCBC) Church in Manheim Pa. This church is a very large church and anything but the typical church that I have known growing up. It has over 9,000 members across three … Continue reading

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