Tag Archives: rett

A View Into Rett Syndrome on The View


If you’re like me, you have never heard of The View, a daytime talk show with a bunch of women talking about politics and current events. Last week The View turned their attention to Rett syndrome, featuring a segment with a young family whose … Continue reading

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RETTOBERFEST IN ROLLER COUNTRY


Today I walked into school and was greeted by a sea of purple. Today was dress down day for Rett Syndrome. Due to technical difficulty last Friday, dress down day was postponed until today. I thought that, at most, 3 … Continue reading

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Caroline’s Cause Supports Baylor College of Medicine


Caroline’s Cause is supporting Baylor College of Medicine and the research it does for Rett Syndrome. Baylor College of Medicine is located in Houston, Texas. The Department of Pediatrics is ranked among the nation’s best and is committed to research … Continue reading

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Caroline’s Prayer


Please tell my parents they have nothing to fear. Please tell them that I was sent from above, just so they could give me all of their love. Continue reading

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Saturday is Church Day


Saturday evening is church day for our family. We attend Lives Changed by Christ (LCBC) Church in Manheim Pa. This church is a very large church and anything but the typical church that I have known growing up. It has over 9,000 members across three … Continue reading

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With a Little Help from My Friends


Last week was nutso. Gateway dropped Caroline’s Primary Care Physician (PCP), which disrupted her Medicaid insurance. What does this mean? Well, in the insurance world—particularly in the Medicaid world—you must have a PCP to get anything done. The PCP is the doctor who writes referrals … Continue reading

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It’s Official: To Wit, Whereas, Resolved!


And now from the General Assembly of the great state of Pennsylvania comes Senate Resolution No. 181 (reposted here in its entirety):      1  Designating October 2007 as “Rett Syndrome Awareness Month” in      2     Pennsylvania.       3     WHEREAS, Rett syndrome … Continue reading

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Rett Awarness Rising!


We have passed the halfway point in our post-a-day marathon, and I wanted to share some comments I’ve received since we started raising awareness for Rett syndrome. From Sabra S (via Holly’s folks): I’ve been following your blog on Caroline’s Cause. My heart is … Continue reading

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Believe!


Tony made this. You can tell he worked hard on it and I think it came out perfect. You can watch his family’s story with Caroline unfold, even as you learn some facts about Rett syndrome and enjoy TSO’s, Believe. I didn’t … Continue reading

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Eleven Going On Thirty: Big Sister Riley


Riley is Caroline’s big sister. I wanted to profile everyone in the family, so I asked Tony to tell me a little about this picture. From Tony: Well, the day we took this picture Riley was asking a lot of questions about Caroline’s care. … Continue reading

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