Tag Archives: scoliosis

The Margin of Error is Five Degrees, the Margin of Hope is Much Greater


Caroline went to her orthopedic surgeon today.  Six months ago at her appointment I was told to prepare myself for an upcoming surgery on her spinal column to correct her scoliosis. They like to tell us 2 years in advance … Continue reading

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Make-A-Wish: If Wishes Were Kisses, Our Face Would be Wet


I think we’ve all heard of Make-A-Wish Foundation, the national nonprofit that helps out terminally ill children by granting them a wish. I’ve mostly heard about it in references to popular culture, where it’s apparently hugely popular to parody. If you look at its Wikipedia … Continue reading

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Scoliosis and Kyphosis: Possibly the Unkindest Cut of All


What is shaping up to be arguably the worst health issue for Caroline has nothing to do with Rett syndrome. Rather its the dual threat of scoliosis (curved spine) and kyphosis (twisted back), both of which are a result of Caroline not having the … Continue reading

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Hard Choices and Invention


Day two in the Caroline’s Cause Post-a-day-marathon offers a meditation on the hard choices a Rett father has to make for his daughter. And the great, unorthodox support staff you occasionally meet along the way. From Tony: October is the month when Caroline’s insurance company reviews her physical … Continue reading

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