Tag Archives: Tony

Angels Among Us


Caroline’s Cause put this video together to give Caroline a way to thank all the wonderful people out there that have given her the love and care that she desperately needs until the cure is found. Without EVERYONE contributing Caroline would not be where she is today. As the saying goes..”it takes a village to raise a child” God sent Caroline a village of angels!

Thank you all for caring.

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With a Little Help from My Friends


Last week was nutso. Gateway dropped Caroline’s Primary Care Physician (PCP), which disrupted her Medicaid insurance. What does this mean? Well, in the insurance world—particularly in the Medicaid world—you must have a PCP to get anything done. The PCP is the doctor who writes referrals … Continue reading

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Believe!


Tony made this. You can tell he worked hard on it and I think it came out perfect. You can watch his family’s story with Caroline unfold, even as you learn some facts about Rett syndrome and enjoy TSO’s, Believe. I didn’t … Continue reading

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Your Mission Jim: Remain Hopeful. Breathe.


Day fourteen. My heart is in my throat. I have had this email from Tony in my inbox for a few days now. I have had situations in my life where I felt powerless, as I am sure we all … Continue reading

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Dress Down Day at the Local High School


We’re coming to the halfway point of October Rett Awareness Month and the Caroline’s cause post a day marathon. That means that we’ve done (almost) half of the posts that we set out to do at the start of the month. This is … Continue reading

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Eleven Going On Thirty: Big Sister Riley


Riley is Caroline’s big sister. I wanted to profile everyone in the family, so I asked Tony to tell me a little about this picture. From Tony: Well, the day we took this picture Riley was asking a lot of questions about Caroline’s care. … Continue reading

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A BFG (Big Friendly Giant) Named Tony


When she was about ten years old, my daughter insisted I read Roald Dahl’s wonderful, The BFG. If you’re like me and have never had the pleasure, The BFG is a lovely children’s story about a large and terrifying giant who turns … Continue reading

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Happy Father’s Day, You Fathers of Rett Girls


The dirty little secret about Caroline’s Cause is this: we are amateurs.  Amateur bloggers, amateur community organizers, and  medical laymen (except for Lisa, who is a bona fide nurse). But Rett Syndrome doesn’t strike only those of us who are well … Continue reading

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