Pages
Tony on Twitter
Tweets by twelhajj-
Featured items
(If you're parenting a Rett child, these are meant to be helpful suggestions)
May 2024 S M T W T F S 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 Meta
Flickr Photos
Archives
- March 2013 (1)
- April 2012 (1)
- January 2012 (1)
- July 2011 (1)
- April 2011 (1)
- February 2011 (2)
- January 2011 (1)
- December 2010 (16)
- November 2010 (2)
- October 2010 (34)
- September 2010 (4)
- August 2010 (2)
- July 2010 (1)
- June 2010 (7)
- May 2010 (8)
- $10000
- 11 going on 30
- amazon
- amazon associates program
- amazon products
- amazon store
- Americans With Disabilities Act
- anticipation
- big sister
- books
- caroline's cause post-a-day-marathon
- caroline's life
- charity
- clint black
- contractures
- damned: if you do
- diary
- disability
- doctor's appointments
- Dr Caso
- e-stim
- eating
- eating with rett syndrome
- elhajj family
- event
- family
- father's day
- fathers
- first dental appointment
- g-tube
- gifts
- gifts for children with rett syndrome
- gifts for disabled children
- golf event
- grateful
- handicap access
- handicap seating
- hard choices
- Inernational Rett Syndrom Foundation
- insurnace
- IRSF
- kyphosis
- Locust Lane Dental Group
- major surgery
- Make-A-Wish Foundation
- medicaid
- medical crisis
- Nissen
- october is rett awareness month
- parenting
- parenting disabled children
- physical therapy
- prizes
- products
- promotion
- pulmonary aspiration
- ramp
- research
- rett
- rett awareness month
- rett syndrome
- riley elhajj
- scoliosis
- sponsors
- ten thousand in cash
- Tina
- Tony
- tony elhajj
- Trans Siberian Orchestra
- TSO
- van
- video
- vitamin enhanced protein mixture
- your donation at work
- youtube
Category Archives: Uncategorized
Caroline’s Cause 2nd Annual Golf Tournament
Caroline’s Cause 2nd Annual Golf Tournament, a set on Flickr. Last week I flew into Pennsylvania for the golf tournament that Caroline’s Dad hosts each year. It was a hoot. I’ll update the blog with more information about the day, … Continue reading
Posted in Uncategorized
1 Comment
Rett Syndrome Research Wins Big in September Pepsi Refresh
It’s official. Rett research wins 250k from the Pepsi refresh project for the month of September. Not sure if you follow this, but I was a voting fool in August and we missed by -><- this much. So this win … Continue reading
Rett Family Blogs
I created a Google alert for Rett Syndrome this morning and almost immediately Google alerted me to something interesting: an article on a WordPress blog associated with Rett Syndrome Research Trust. The article is an interview with a researcher, Cathleen Lutz of the Jackson Laboratory … Continue reading
Posted in Uncategorized
Leave a comment
What’s Going on Here?
We’re bringing up a Web site for Caroline’s Cause, the name of the effort to raise money and organize for my niece Caroline’s care. What a sweet little girl: you can find pictures of her on the About page. We … Continue reading
Posted in Uncategorized
2 Comments
Hello world!
Welcome to WordPress.com. This is your first post. Edit or delete it and start blogging!
Posted in Uncategorized
1 Comment