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(If you're parenting a Rett child, these are meant to be helpful suggestions)
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Tag Archives: rett syndrome
Racing Against Rett Syndrome
John Houseman (pictured) is a man with a mission. An Ironman with a mission. On June 23, 2013 John is putting his heart and soul on the line, racing in an Ironman competition for the benefit of Caroline’s Cause. John … Continue reading
Saturday, June 23 2012: 3rd Annual Caroline’s Cause Golf Tournament 4-person Scramble
We’re back for another year! Once again we’re going to be in Middletown at Sunset Golf Course. The success of last year’s tournament enabled use to purchase a golden doodle for Caroline. The dog, Jasmine, is a companion for Caroline. … Continue reading
Posted in event
Tagged charity, event, gifts for children with rett syndrome, rett syndrome, tony elhajj
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June 26, 2011: 2nd Annual Golf Tournament
We are gearing up for our 2nd Annual Golf Tournament. Actually I don’t believe we ever stopped thinking, talking, or preparing for this year’s golf tournament. The last tournament was in process and we began talking about the next tournament … Continue reading
A View Into Rett Syndrome on The View
If you’re like me, you have never heard of The View, a daytime talk show with a bunch of women talking about politics and current events. Last week The View turned their attention to Rett syndrome, featuring a segment with a young family whose … Continue reading
A Spoonful of Applesauce
Today’s Headline News: Caroline ate a few spoonfuls of applesauce. Big news, right? Well, it is if you haven’t had anything to eat with your mouth in over six years! After Caroline’s diagnosis of Rett syndrome, one the of first procedures we had … Continue reading
Posted in family
Tagged family, parenting disabled children, physical therapy, pulmonary aspiration, rett syndrome, video
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Eight Years on the Planet
Late last month, Caroline (pictured) turned eight. Eight years on the planet. For Caroline’s birthday, Tony had a little cake party at Hershey park. My daughter will turn thirteen in January and already we have begun the planning for how she will spend the day. … Continue reading
Posted in family
Tagged birthday party, caroline's life, disability, parenting, parenting disabled children, rett syndrome
1 Comment
Angels Among Us
Caroline’s Cause put this video together to give Caroline a way to thank all the wonderful people out there that have given her the love and care that she desperately needs until the cure is found. Without EVERYONE contributing Caroline would not be where she is today. As the saying goes..”it takes a village to raise a child” God sent Caroline a village of angels!
Thank you all for caring.
Posted in marathon
Tagged caroline's cause post-a-day-marathon, charity, disability, fathers, I am in it to win it!, it takes a village to raise a child, october is rett awareness month, parenting disabled children, physical therapy, rett awareness month, rett syndrome, thank all the wonderful people, Thank you all for caring, Tony, tony elhajj, video, village of angels, youtube
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RETTOBERFEST IN ROLLER COUNTRY
Today I walked into school and was greeted by a sea of purple. Today was dress down day for Rett Syndrome. Due to technical difficulty last Friday, dress down day was postponed until today. I thought that, at most, 3 … Continue reading
Posted in marathon
Tagged caroline's cause post-a-day-marathon, charity, event, free bowl of Caroline’s homemade chili, Go Rollers, october is rett awareness month, rett, Rett Angel Sisters, rett awareness month, rett syndrome, RETTOBERFEST IN ROLLER COUNTRY, Roller Pride and Support, Roller Staff, sea of purple, support and kindness, your donation at work
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Caroline’s Cause Supports Baylor College of Medicine
Caroline’s Cause is supporting Baylor College of Medicine and the research it does for Rett Syndrome. Baylor College of Medicine is located in Houston, Texas. The Department of Pediatrics is ranked among the nation’s best and is committed to research … Continue reading
Posted in marathon
Tagged Baylor College of Medicine, biochemical switch, caroline's cause post-a-day-marathon, charity, Department of Pediatrics at Baylor College of Medicine, Dr. Huda Y. Zoghbi, Dr. Jeffrey L Neul, Houston, MECP2 gene, october is rett awareness month, research, rett, rett awareness month, rett syndrome, Texas, working with mice
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Lifting Balloons and Raising Awareness for Rett Syndrome
On Friday, October 22, Caroline’s family and friends met to release 4 dozen purple balloons. The balloon release was done to honor and support the girls affected by Rett Syndrome. The hope and prayer is to raise awareness for Rett … Continue reading
Caroline's Cause 