Tag Archives: fathers

Angels Among Us

Posted on October 31, 2010 by Tony Elhajj

Caroline’s Cause put this video together to give Caroline a way to thank all the wonderful people out there that have given her the love and care that she desperately needs until the cure is found. Without EVERYONE contributing Caroline would not be where she is today. As the saying goes..”it takes a village to raise a child” God sent Caroline a village of angels!

Thank you all for caring.

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Posted in marathon | Tagged caroline's cause post-a-day-marathon, charity, disability, fathers, I am in it to win it!, it takes a village to raise a child, october is rett awareness month, parenting disabled children, physical therapy, rett awareness month, rett syndrome, thank all the wonderful people, Thank you all for caring, Tony, tony elhajj, video, village of angels, youtube | 4 Comments

Lifting Balloons and Raising Awareness for Rett Syndrome

Posted on October 28, 2010 by Lisa Luttrell

On Friday, October 22, Caroline’s family and friends met to release 4 dozen purple balloons. The balloon release was done to honor and support the girls affected by Rett Syndrome. The hope and prayer is to raise awareness for Rett … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, charity, event, fathers, october is rett awareness month, parenting disabled children, rett awareness month, rett syndrome, tony elhajj | Leave a comment

Dr Warren, My Hero!

Posted on October 26, 2010 by Tony Elhajj

I can t write a blog about Caroline and Rett Syndrome without mentioning Dr. Stewart Warren, Pediatric Pulmonology at Hershey Medical Center. Dr. Warren and I first met in 2004 when Caroline was experiencing some respiratory problems and our family … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, caroline's life, disability, Dr. Stewart Warren, fathers, october is rett awareness month, parenting disabled children, Pediatric Pulmonology at Hershey Medical Center, rett awareness month, rett syndrome, smart vest, tony elhajj | 4 Comments

Saturday is Church Day

Posted on October 24, 2010 by Tony Elhajj

Saturday evening is church day for our family. We attend Lives Changed by Christ (LCBC) Church in Manheim Pa. This church is a very large church and anything but the typical church that I have known growing up. It has over 9,000 members across three … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, caroline's life, fathers, LCBC church, Lives Changed By Christ, Manheim Pa, october is rett awareness month, parenting disabled children, rett, rett awareness month, rett syndrome | 4 Comments

With a Little Help from My Friends

Posted on October 21, 2010 by Tony Elhajj

Last week was nutso. Gateway dropped Caroline’s Primary Care Physician (PCP), which disrupted her Medicaid insurance. What does this mean? Well, in the insurance world—particularly in the Medicaid world—you must have a PCP to get anything done. The PCP is the doctor who writes referrals … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, disability, fathers, friends helping friends, insurance, just a little help from my friends, medicaid, medical crisis, october is rett awareness month, parenting disabled children, PCP, physical therapy, primary care physician, pulmonary aspiration, rett, rett awareness month, rett syndrome, Tony, tony elhajj | Leave a comment

Believe: The Director’s Cut

Posted on October 16, 2010 by Tim Elhajj

Yesterdays’ video, Believe, was hugely popular! In fact, with 78 page views, it was THE most popular post ever on Caroline’s Cause. Today’s video is also pretty cool. Tony told me this was his practice video, where he figured out how … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, caroline's life, disability, fathers, october is rett awareness month, Orson Wells of YouTube, parenting disabled children, rett syndrome, tony elhajj, video, vote, youtube | Leave a comment

Believe!

Posted on October 15, 2010 by Tim Elhajj

Tony made this. You can tell he worked hard on it and I think it came out perfect. You can watch his family’s story with Caroline unfold, even as you learn some facts about Rett syndrome and enjoy TSO’s, Believe. I didn’t … Continue reading →

Posted in marathon | Tagged believe, caroline's cause post-a-day-marathon, caroline's life, charity, disability, fathers, october is rett awareness month, parenting disabled children, rett, rett awareness month, rett syndrome, RTT, Tony, tony elhajj, Trans-Siberian Orchestra - Believe, TSO, video | 1 Comment

Eleven Going On Thirty: Big Sister Riley

Posted on October 8, 2010 by Tim Elhajj

Riley is Caroline’s big sister. I wanted to profile everyone in the family, so I asked Tony to tell me a little about this picture. From Tony: Well, the day we took this picture Riley was asking a lot of questions about Caroline’s care. … Continue reading →

Posted in marathon | Tagged 11 going on 30, big sister, caroline's cause post-a-day-marathon, caroline's life, diary, disability, family, fathers, october is rett awareness month, rett, rett awareness month, rett syndrome, riley elhajj, Tony, tony elhajj | 4 Comments

A BFG (Big Friendly Giant) Named Tony

Posted on October 7, 2010 by Tim Elhajj

When she was about ten years old, my daughter insisted I read Roald Dahl’s wonderful, The BFG. If you’re like me and have never had the pleasure, The BFG is a lovely children’s story about a large and terrifying giant who turns … Continue reading →

Posted in marathon | Tagged BFG, caroline's cause post-a-day-marathon, caroline's life, charity, fatherhood, fathers, giant, parenting, parenting disabled children, rett syndrome, roald dahl, Tony, tony elhajj | 2 Comments

Happy Father’s Day, You Fathers of Rett Girls

Posted on June 20, 2010 by Tim Elhajj

The dirty little secret about Caroline’s Cause is this: we are amateurs. Amateur bloggers, amateur community organizers, and medical laymen (except for Lisa, who is a bona fide nurse). But Rett Syndrome doesn’t strike only those of us who are well … Continue reading →