Tag Archives: fathers

Angels Among Us


Caroline’s Cause put this video together to give Caroline a way to thank all the wonderful people out there that have given her the love and care that she desperately needs until the cure is found. Without EVERYONE contributing Caroline would not be where she is today. As the saying goes..”it takes a village to raise a child” God sent Caroline a village of angels!

Thank you all for caring.

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Lifting Balloons and Raising Awareness for Rett Syndrome


On Friday, October 22, Caroline’s family and friends met to release 4 dozen purple balloons. The balloon release was done to honor and support the girls affected by Rett Syndrome. The hope and prayer is to raise awareness for Rett … Continue reading

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Dr Warren, My Hero!


I can t write a blog about Caroline and Rett Syndrome without mentioning Dr.  Stewart Warren, Pediatric Pulmonology at Hershey Medical Center. Dr. Warren and I first met in 2004 when Caroline was experiencing some respiratory problems and our family … Continue reading

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Saturday is Church Day


Saturday evening is church day for our family. We attend Lives Changed by Christ (LCBC) Church in Manheim Pa. This church is a very large church and anything but the typical church that I have known growing up. It has over 9,000 members across three … Continue reading

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With a Little Help from My Friends


Last week was nutso. Gateway dropped Caroline’s Primary Care Physician (PCP), which disrupted her Medicaid insurance. What does this mean? Well, in the insurance world—particularly in the Medicaid world—you must have a PCP to get anything done. The PCP is the doctor who writes referrals … Continue reading

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Believe: The Director’s Cut


Yesterdays’ video, Believe, was hugely popular! In fact, with 78 page views, it was THE most popular post ever on Caroline’s Cause. Today’s video is also pretty cool. Tony told me this was his practice video, where he figured out how … Continue reading

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Believe!


Tony made this. You can tell he worked hard on it and I think it came out perfect. You can watch his family’s story with Caroline unfold, even as you learn some facts about Rett syndrome and enjoy TSO’s, Believe. I didn’t … Continue reading

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Eleven Going On Thirty: Big Sister Riley


Riley is Caroline’s big sister. I wanted to profile everyone in the family, so I asked Tony to tell me a little about this picture. From Tony: Well, the day we took this picture Riley was asking a lot of questions about Caroline’s care. … Continue reading

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A BFG (Big Friendly Giant) Named Tony


When she was about ten years old, my daughter insisted I read Roald Dahl’s wonderful, The BFG. If you’re like me and have never had the pleasure, The BFG is a lovely children’s story about a large and terrifying giant who turns … Continue reading

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Happy Father’s Day, You Fathers of Rett Girls


The dirty little secret about Caroline’s Cause is this: we are amateurs.  Amateur bloggers, amateur community organizers, and  medical laymen (except for Lisa, who is a bona fide nurse). But Rett Syndrome doesn’t strike only those of us who are well … Continue reading

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