Tag Archives: medical crisis

With a Little Help from My Friends

Posted on October 21, 2010 by Tony Elhajj

Last week was nutso. Gateway dropped Caroline’s Primary Care Physician (PCP), which disrupted her Medicaid insurance. What does this mean? Well, in the insurance world—particularly in the Medicaid world—you must have a PCP to get anything done. The PCP is the doctor who writes referrals … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, disability, fathers, friends helping friends, insurance, just a little help from my friends, medicaid, medical crisis, october is rett awareness month, parenting disabled children, PCP, physical therapy, primary care physician, pulmonary aspiration, rett, rett awareness month, rett syndrome, Tony, tony elhajj | Leave a comment

Scoliosis and Kyphosis: Possibly the Unkindest Cut of All

Posted on October 6, 2010 by Tim Elhajj

What is shaping up to be arguably the worst health issue for Caroline has nothing to do with Rett syndrome. Rather its the dual threat of scoliosis (curved spine) and kyphosis (twisted back), both of which are a result of Caroline not having the … Continue reading →

Posted in marathon | Tagged caroline's cause post-a-day-marathon, caroline's life, charity, damned: if you do, damned: if you do/if you don't, damned: if you don't, health issues, kyphosis, medical crisis, parenting disabled children, physical therapy, scoliosis | 3 Comments

The Cofflator: I’ll Be Back

Posted on October 5, 2010 by Tim Elhajj

Recently I asked Tony about a picture of Riley using a cofflator machine (pictured) on Caroline. I already know of the huge risk aspiration is for Caroline. What I didn’t realize was all the work requried to mitigate the risk. Part of her daily treatment requries clearing … Continue reading →

Posted in marathon | Tagged aspiration risk, caroline's cause post-a-day-marathon, caroline's life, Cofflator, I'll be back, medical crisis, october is rett awareness month, parenting disabled children, promotion, pulmonary aspiration, rett syndrome | 2 Comments

Happy Father’s Day, You Fathers of Rett Girls

Posted on June 20, 2010 by Tim Elhajj

The dirty little secret about Caroline’s Cause is this: we are amateurs. Amateur bloggers, amateur community organizers, and medical laymen (except for Lisa, who is a bona fide nurse). But Rett Syndrome doesn’t strike only those of us who are well … Continue reading →