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Tag Archives: caroline’s cause post-a-day-marathon
Angels Among Us
Caroline’s Cause put this video together to give Caroline a way to thank all the wonderful people out there that have given her the love and care that she desperately needs until the cure is found. Without EVERYONE contributing Caroline would not be where she is today. As the saying goes..”it takes a village to raise a child” God sent Caroline a village of angels!
Thank you all for caring.
Posted in marathon
Tagged caroline's cause post-a-day-marathon, charity, disability, fathers, I am in it to win it!, it takes a village to raise a child, october is rett awareness month, parenting disabled children, physical therapy, rett awareness month, rett syndrome, thank all the wonderful people, Thank you all for caring, Tony, tony elhajj, video, village of angels, youtube
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RETTOBERFEST IN ROLLER COUNTRY
Today I walked into school and was greeted by a sea of purple. Today was dress down day for Rett Syndrome. Due to technical difficulty last Friday, dress down day was postponed until today. I thought that, at most, 3 … Continue reading
Posted in marathon
Tagged caroline's cause post-a-day-marathon, charity, event, free bowl of Caroline’s homemade chili, Go Rollers, october is rett awareness month, rett, Rett Angel Sisters, rett awareness month, rett syndrome, RETTOBERFEST IN ROLLER COUNTRY, Roller Pride and Support, Roller Staff, sea of purple, support and kindness, your donation at work
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Caroline’s Cause Supports Baylor College of Medicine
Caroline’s Cause is supporting Baylor College of Medicine and the research it does for Rett Syndrome. Baylor College of Medicine is located in Houston, Texas. The Department of Pediatrics is ranked among the nation’s best and is committed to research … Continue reading
Posted in marathon
Tagged Baylor College of Medicine, biochemical switch, caroline's cause post-a-day-marathon, charity, Department of Pediatrics at Baylor College of Medicine, Dr. Huda Y. Zoghbi, Dr. Jeffrey L Neul, Houston, MECP2 gene, october is rett awareness month, research, rett, rett awareness month, rett syndrome, Texas, working with mice
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Lifting Balloons and Raising Awareness for Rett Syndrome
On Friday, October 22, Caroline’s family and friends met to release 4 dozen purple balloons. The balloon release was done to honor and support the girls affected by Rett Syndrome. The hope and prayer is to raise awareness for Rett … Continue reading
Shop, Shop, Shop: Caroline’s Cause Amazon Store
You can support Caroline’s Cause each time you purchase something from Amazon by clicking the link to Amazon in our menu. It’s always there on our menu and looks like this: If you click this link from our site and then purchase something … Continue reading
Dr Warren, My Hero!
I can t write a blog about Caroline and Rett Syndrome without mentioning Dr. Stewart Warren, Pediatric Pulmonology at Hershey Medical Center. Dr. Warren and I first met in 2004 when Caroline was experiencing some respiratory problems and our family … Continue reading
Posted in marathon
Tagged caroline's cause post-a-day-marathon, caroline's life, disability, Dr. Stewart Warren, fathers, october is rett awareness month, parenting disabled children, Pediatric Pulmonology at Hershey Medical Center, rett awareness month, rett syndrome, smart vest, tony elhajj
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Caroline’s Prayer
Please tell my parents they have nothing to fear. Please tell them that I was sent from above, just so they could give me all of their love. Continue reading
Saturday is Church Day
Saturday evening is church day for our family. We attend Lives Changed by Christ (LCBC) Church in Manheim Pa. This church is a very large church and anything but the typical church that I have known growing up. It has over 9,000 members across three … Continue reading
Speak, Child. Be Heard.
Hi, my name is Caroline and I am 7 years old and have Rett Syndrome. Some days Rett Syndrome has me down, but I am determined to not let those days outweigh the good days. My family and nurses help … Continue reading
A Note From Big Sister
(Click for larger image.)